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Brothers

Brothers

Joshua is a happy and curious ten year old boy. He was diagnosed with Congenital Cytomegalovirus (CMV) and Spastic Quadriplegia Cerebral Palsy as infant. Joshua’s brother, Caleb, is very active, which is one of the most obvious differences between the boys. As the boys get older, their relationship continues to change. When they were younger, Josh and Caleb did not play together, but they are starting to find more ways to connect.

Joshua Nodine, 8, watches as his parents set up Christmas lights and his brother, Caleb, 6, runs into a leaf pile on Nov. 18, 2016.

Caleb loves to be helpful. Their parents, Jamie and Ben, hope that Caleb will continue to take interest in helping and supporting Josh, but they are careful to avoid putting that pressure on him. Although the family may seem different to those who do not know them, Jamie says they deal with the same joys and struggles of any ordinary family.

Josh Nodine (right), 8, looks over at his brother Caleb, 6, as they sit in their home in Webster, N.Y. on Nov. 11, 2016. As the boys get older, Caleb is starting to want to take on a more active role in Josh's life.

Jamie Nodine (right), gets her son, Joshua, 9, dressed for the day at their home in Webster, N.Y. on March 31, 2017.

Jamie Nodine talks with her husband, Ben, before leaving the house on March 16, 2017. Jamie usually gets Josh and Caleb ready for school but had to leave early that day.

Jamie talks with Josh's bus driver, Ed, as Joshua, 10, gets on the school bus by their house.

Ben (right) holds up his son Joshua, 8, as he and his brother Caleb, 6, play in a leaf pile outside their home on Nov. 18, 2016.

Ben (left) talks to his son, Joshua, 10, while Jamie Nodine checks one of the monitors in his hospital room after surgery to get his Gastrostomy Tube at Golisano Children's Hospital on June 13, 2018. Josh got the G-Tube to supplement his diet as he was not maintaining the expected weight for his age.

Jamie (left) calls to update family members after her son, Joshua (right), 10, had surgery to get his Gastrostomy Tube at Golisano Children's Hospital on June 12, 2018. Jamie says that the G-Tube has made life a lot easier for their family.

Josh, 9, and his brother Caleb, 7, play with the grandfather at their home on Dec. 13, 2017. When they were younger, the boys rarely played together, but now that Caleb is older, they are beginning to have more of a relationship.

Jamie and her son Caleb (right), 7, cuddle in their home on Dec. 13, 2017. The family tries to make sure that Caleb gets individual attention whenever they can since they often have to focus on Josh.

Josh, 8, plays with a Cloud b twilight turtle toy at his home on Nov. 18, 2016. Josh loves playing with colorful lights and has a variety of light toys in his room.

This an ongoing project. Check back soon for an updated audio piece about the brothers.

Visit https://bridgetfetsko.format.com/brothers#2 for the previous version of the project.

Last names withheld.